POLYCYSTIC LIVER DISEASE -- INFORMATION FOR PATIENTS
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LINKS TO USEFUL ORGANIZATIONS


American Liver Foundation
www.liverfoundation.org

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American Liver Foundation – Information for patients and families
http://www.liverfoundation.org/patients/

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Canadian Liver Foundation
www.liver.ca

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British Liver Trust
www.britishlivertrust.org.uk

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National Liver Foundation (India)
www.nlfindia.com

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National Library of Medicine
www.nlm.nih.gov/medlineplus/healthtopics.html

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National Institute of Diabetes and Digestive and Kidney Diseases
www.niddk.nih.gov


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American College of Gastroenterology
http://gi.org/

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American Association for the Study of Liver Diseases
http://www.aasld.org/Pages/Default.aspx


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Children’s Liver Association for Support Services
www.classkids.org

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Liver Families - Pediatric Liver Disease
http://www.liverfamilies.net/


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National Organization for Rare Disorders
http://www.rarediseases.org/

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NIH Clinical Trials database
http://clinicaltrials.gov

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United Network for Organ Sharing
www.unos.org/

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Canadian Blood Services – Living Donor Paired Exchange
www.blood.ca/organsandtissues

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Scientific Registry of Organ Transplants
http://www.srtr.org/

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European Society for Organ Transplantation (ESOT)
www.esot.org

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Genetic and Rare Diseases Information Center
http://rarediseases.info.nih.gov/GARD/AboutGARD.aspx

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Online Medical dictionary from National Library of Medicine
www.nlm.nih.gov/medlineplus/mplusdictionary.html

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Academy of Nutrition and Dietetics (registered dietitians)
www.eatright.org

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Mayo Clinic information
www.mayo.edu

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PKDIET
www.pkdiet.com

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PKD Foundation
www.pkdcure.org

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National Kidney Foundation
www.kidney.org

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American Kidney Fund
www.akfinc.org

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National Kidney Disease Education Program
www.nkdep.nih.gov
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American Association of Kidney Patients
www.aakp.org

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Online checker for drug interactions
www.drugs.com/drug_interactions.php



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